Joanne Wolfe , MD, MPH

Kreicbergs UC, Lannen P, Onelov E, Wolfe J

Resolution of Parental Grief Following the Loss of a Child to Cancer - A Nationwide Follow-up Study , 2007

Journal of Clinical Oncology  Issue: 25(22) , Page: 3307-12

Duncan J, Spengler E, Wolfe J

Providing Pediatric Palliative Care: PACT in Action , 2007

The American Journal of Maternal/Child Nursing  Issue: 32(5) , Page: 279-287

Mack JW, Joffe S, Hilden JM, Watterson J, Moore C, Weeks JC, Wolfe J

Parents' views of cancer-directed therapy for children with no realistic chance for cure , 2008

Journal of Clinic Oncology  Issue: 26(29) , Page: 1-8

Kreicbergs U, LicPhil PL, Onelov E, Wolfe J

Resolution of parental grief following the loss of a child to cancer: A nationwide follow-up study , 2007

Journal of Clinic Oncology  Issue: 25(22) , Page: 3307-3312

Wolfe J, Hammel JF, Edwards KE, Duncan J, Comeau M, Breyer J, Aldridge S, Grier HE, Berde C, Dussel V, Weeks JC

Easing of suffering in children with cancer at the end of life: A follow-up study , 2008

Journal of Clinic Oncology  Issue: 26(10) , Page: 1717-1723

Edwards KE, Neville BA, Cook EF, Aldridge SH, Dussel V, Wolfe J

Understanding of Prognosis and Goals of Care among Couples Whose Child Died of Cancer , 2008

Journal of Clinical Oncology  Issue: 26(8) , Page: 1310-1315

Wolfe J, Hammel JF, Edwards KE, Duncan J, Comeau M, Breyer J, Aldridge S, Grier HE, Berde C, Dussel V, Weeks JC

Easing of suffering in children with cancer at the end of life: A follow-up study , 2008

Journal of Clinical Oncology  Issue: 26(10) , Page: 1717-1723

Liben S, Papadatou D, Wolfe J

Paediatric Palliative Care: Challenges and Emerging Ideas , 2008

Joanne Wolfe's research focuses on palliative care. Through clinical trials, she is evaluating approaches to care that preserve hope and optimize quality of life and comfort. Her projects include: A prospective longitudinal study observing a cohort of children with advanced cancer and their families. It is designed to delineate the quality of key elements of care by studying parent and physician perceptions about prognosis and treatment goals, symptoms, and quality of life in children. An intervention that provides feedback on symptom and quality-of-life scores as a component of the routine care of children with advanced cancer. This feedback is provided by a computerized data collection system called Pediatric Quality of Life Evaluation of Symptoms Technology (PediQUEST). The system generates electronic mail notifications alerting providers to repeated high levels of symptom distress. This, in turn, may lead to better control of symptoms and result in less distress. Greater attention to quality of life also may stimulate parent and physician communication about prognosis and treatment goals and lead to earlier decision-making about palliative care outcomes. A collaboration with Dr. Charles Berde from the Pain Treatment Service at Children's Hospital Boston on a multicenter trial assessing the role of methylphenidate in the treatment of fatigue and somnolence in children with advanced cancer.

Research site for Joanne Wolfe, MD, MPH

Children's Hospital Boston