Spina Bifida | Teen Resources

If you have spina bifida, you’re not alone: Every year, more than 1,600 babies are born with this condition. But teens have very different needs from babies — and you’ve probably got a lot of questions about living with spina bifida as you grow up.

The clinicians in the Spina Bifida and Spinal Cord Conditions Center at Boston Children’s Hospital have answers. Whether you need advice on finding the right shoes or transitioning into adult care, these resources can help.

Rebecca SherlockLiving with spina bifida: Sherlock's answers

Have a question about how to live your best life with spina bifida? Check out our growing video library of quick answers from Rebecca Sherlock, a nurse practitioner who specializes in treating children with spina bifida and other neuromuscular conditions. She has developed wellness and self-esteem programs seeking to empower teens and young adults with spina bifida.

 

Let’s talk spina bifida!

Submit your question about living with spina bifida or share your own tips and tricks! Although we can’t respond personally, Rebecca will try to address the most popular lifestyle questions in an upcoming video.

Looking for more information or support?

The transition to adulthood

Becoming an adult can be both exciting and scary, especially if you’re living with a chronic medical condition like spina bifida. At the Spina Bifida and Spinal Cord Conditions Center, we help you and your family identify life goals and then work toward them, whether you’re focused on transitioning to college or need ongoing support.

After you turn 14, our neuropsychologist and social worker will meet yearly with you and your family to assess and discuss your ability to take charge of your own care.

  • assuming responsibility for their health needs
  • selecting appropriate educational programs
  • evaluating job skills and possible vocational supports
  • advocating for services
  • building independent functioning and self-management skills
  • developing healthy relationships
  • helping families navigate the guardianship process

Helpful external websites