Resources at Boston Children’s CDKL5 Clinic
- occupational therapy
- physical therapy
- speech/assistive technology
- Augmentative Communication Program
- social work
- primary care
- care coordination (expertise provided by Richard Antonelli, MD, MS)
- other specialists affiliated with the Rett Syndrome Program (such as cardiologists) are also available if needed.
External information and resources
The International Foundation for CDKL5 Research has a website full of information about the condition, research, and family support.