Current Environment:


Medication Recall

The FDA has issued a medication recall because of bacterial contamination. See more.

Sponsors | Overview


We appreciate the assistance provided by the organizations listed below. Without them, our work would not be possible. Please follow the links to their websites if you want to learn more about their work as well as how to provide support.



AFMTELETHON - The French Muscular Dystrophy Association

A Foundation for Building Strength For Nemaline Myopathy - A Foundation Building Strength is a non–profit organization dedicated to finding treatments for Nemaline Myopathy.

Cure CMD - Supporting the Congenital Muscular Dystrophy Community

Joshua Frase Foundation - Research support on the centronuclear myopathies, including MTM and other congenital myopathies

Lee & Penny Anderson Family Foundation - Founding supporter of the Multiminicore Myopathy Research Program at Boston Children's Hospital

Muscular Dystrophy Association - Muscular Dystrophy Association

National Institute of Arthritis and Muscouloskeletal and Skin Diseases (NIAMS) of the NIH

National Institute of Neurological Disorders and Stroke (NINDS) of the NIH

Where There’s a Will There’s a Cure - Foundation for Myotubular Myopathy


We also receive generous donations from many individual donors and contributors to our research at Boston Children's Hospital. For more information, please go to our Ways to Help page.


This page was last updated October 21, 2020.